Sadie & Fam
Joy, advocacy & awareness for Sanfilippo
Contact Congress #ApproveHopeNow
Contact Congress #ApproveHopeNow
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About Sanfilippo & Testing
Learn about Sanfilippo
Learn about Sanfilippo
A cure can't wait. The Foundation accelerates research to find a cure and/or treatment for Sanfilippo Syndrome (MPS III), childhood dementia.
Symptoms of Sanfilippo
Symptoms of Sanfilippo
These are the early symptoms of Sanfilippo Syndrome, as well as those that typically develop later, as Sanfilippo progresses.
Testing for Sanfilippo
Testing for Sanfilippo
Does your child have symptoms that make you suspect Sanfilippo Syndrome? Find out more about Sanfilippo and what to do next.
Get Involved
How To Help
How To Help
You can help the day there is a therapy and/or cure for Sanfilippo Syndrome happen sooner. Here are ways you can help.
Saving Sadie Rae Merch (Benefits Cure Sanfilippo Foundation)
Saving Sadie Rae Merch (Benefits Cure Sanfilippo Foundation)
Helpful Products
Gummee Mouthing Stimming Glove, Chewing Gloves for Autism, Rett & Down Syndrome, SPD, ADHD, Palsy, Alzheimers, Global Development Delay & Dementia - BPA Free Sensory Aid Toy - Medium (Child)
Gummee Mouthing Stimming Glove, Chewing Gloves for Autism, Rett & Down Syndrome, SPD, ADHD, Palsy, Alzheimers, Global Development Delay & Dementia - BPA Free Sensory Aid Toy - Medium (Child)
Buy Gummee Mouthing Stimming Glove, Chewing Gloves for Autism, Rett & Down Syndrome, SPD, ADHD, Palsy, Alzheimers, GDD & Dementia - BPA Free Sensory Aid Toy - Medium Approx. 5-10 yrs on Amazon.com ✓ FREE SHIPPING on qualified orders
Cubby Safety Beds Funding Quiz
Cubby Safety Beds Funding Quiz
Are you ready to get safe sleep for your loved one? This is the place to start! Our goal is to ensure their safety + comfort so you can both get the sleep you deserve and the peace of mind you need. Most Cubby Bed's are covered by insurance, but other options are also available. Click the button below to let us know how we can help you take the first step towards a more restful night's sleep.
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Special Needs Float
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Media Articles
Metro article - January 2024
Metro article - January 2024
The condition means her life expectancy is limited to around 20 years.
The Sun article - January 2024
The Sun article - January 2024
Special Books by Special Kids interview - January 2023
Special Books by Special Kids interview - January 2023
Sadie is diagnosed with a form of childhood dementia known as Sanfilippo syndrome. This rare genetic disorder slowly takes away a child’s ability to walk, ta...
ABC News article - December 2022
ABC News article - December 2022
Sanfilippo syndrome, a condition classified as childhood dementia, affects an estimated 1 in every 70,000 births and parents tell ABC News' Faith Abubey they're not giving up on finding a cure.
Newsweek article - October 2022
Newsweek article - October 2022
Sadie's parents were crushed when their beautiful baby daughter was diagnosed with a terminal disease at three months, but they are determined to save her.
Fox interview - September 2022
Fox interview - September 2022
Tyla article - June 2022
Tyla article - June 2022
CBS interview - May 2021
CBS interview - May 2021
Fox interview - March 2021
Fox interview - March 2021
Love What Matters article - November 2019
Love What Matters article - November 2019
People Magazine article - September 2016
People Magazine article - September 2016
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