Welcome to SMA UK
About SMA UK
At SMA UK, we are committed to supporting everyone affected by SMA so that they have access to the best care, support and treatment and there will be no barriers preventing full inclusion in society.
Watch our short film here.
Newborn Screening for SMA Takes Another Major Step Forward
Today marks another landmark moment in the journey towards ensuring every baby born with spinal muscular atrophy (SMA) has the opportunity to receive life-changing treatment before symptoms develop.
Read more here >
Find out more about the work we do
Fundraising
News
Treatments & Research
SMA in numbers
638
Families and adults living with SMA we’ve supported in 2025
63
Families and adults receiving wheelchairs through SMArt Moves Grants in 2025
167
Families and adults getting support through FleixGrants in 2025
Support our work
£5
per month
Could help fund a phone call with a member of our Outreach Team for a family who have just received a diagnosis of SMA
£10
per month
Could make a valuable contribution to funding our Health Information Officer who ensures that our information on treatments and clinical trials is up to date
£15
per month
Could help us to put on a event where the SMA Community can connect and share experiences
